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A team of University of Iowa (UI) researchers conducted a study to determine people's preferences with respect to informed consent for biobanking. Forty-one percent of people surveyed and 54% of those in focus groups were in favor of the broad approach to providing consent.
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In response to concerns raised about review boards' evaluation of genetic research, a group of investigators, ethicists, and other stakeholders has surveyed genetic researchers and review board professionals to discern what issues are complicating review.
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For patients with severe heart failure, an implanted mechanical pump known as a Left Ventricular Assist Device (LVAD) can be a life-sustaining treatment. Even though the technology involves risks, few patients and their families tend to talk explicitly about the "what ifs" before surgery takes place.
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After two district courts struck down the Centers for Medicare and Medicaid Services' (CMS) regulations for calculating hospice caps, CMS issued an unprecedented rule that allowed all hospices with appropriately filed hospice cap repayment demand appeals to avoid going to court.
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Is the possibility of a person having total access to their individual health records too much power for the person? If given such access, could a person incorrectly alter or add information to the record?
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As a research institution's human subjects research increases, so must the work.
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The National Hospice and Palliative Care Organization (NHPCO) issued a position statement and commentary, "Hospice and Palliative Care: Ethical Marketing Practices," that guides providers to the use of sound, ethical practices that enhance the perception of hospice in the community.
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As high school students get exposed to more sophisticated science and health programs, some are also having their first encounters with human subjects protection issues.
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Applying community engagement to mental health research can help researchers design studies that incorporate the priorities of people with mental illness and arrive at the best strategies for working with them.
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All over the world, illegal organ trafficking is being reported. Most people have probably heard the urban myths of many out-of-country vacationers who wake up in a bathtub full of ice and their kidneys removed.
