Medical Ethics Advisor
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Consultants Need Preparation for Common Ethics Challenges
Shadowing experienced ethics consultants and participating in debriefings after consults with other members of the ethics team are top priorities for ethics training.
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Ethics Consultants Want More Training for First Jobs
Clinical bioethics training programs serve a wide variety of individuals, some with clinical backgrounds, others with PhDs. Most graduates indicated that their basic training in ethics was adequate. Still, many wanted more training in quality improvement skills, including some exposure to quality improvement methodology. They also wanted to learn how to negotiate for resources and how to communicate with hospital leadership.
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Policy on Inappropriate Treatment Used in 25% of Ethics Consults
This suggests providers are searching for definitive tools, in addition to the ethics committee, to help resolve difficult end-of-life cases.
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Patients with HIV More Likely to Take Medication Described as ‘Cure’
Clinicians and researchers should improve informed consent so that people living with HIV have a realistic understanding of treatment options and possible outcomes.
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Informed Consent Remains a Process, Not a Checkbox
E-consent can make informed consent easier, but researchers must avoid turning the process into a mindless task.
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Most Parents Decide on Study Participation Before Receiving Consent Form
Efforts to improve informed consent for research usually focus on consent forms, making them shorter, less complicated, and easier to understand. A recent study revealed most parents decide whether they want their children to participate in research before they ever see a consent form.
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‘It’s a No-Man’s Land’: The Pitfalls of Genetic Data-Sharing and Informed Consent
It is unclear how well participants really understand all the potential risks of sharing their DNA. Researchers are ethically obligated to be sure that what they are asking people to consent to is just, fair, appropriate, and respectful of human rights.
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Privacy Remains Central Problem with Genomic Data-Sharing
Making the system more trustworthy requires greater transparency, clear principles of accountability, and more comprehensive laws and regulations that protect against discriminatory uses of genetic information. The results of a recent survey may reveal the work ahead.
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New Guidance Outlines Ethics of Embryo Research
According to the statement, human embryo research is ethically acceptable if it is “likely to provide significant new knowledge that may benefit human health, well-being of the offspring, or reproduction.”
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Ethical Concerns About Surge of Involuntary Psychiatric Detention, Lack of Data
There is no national database on involuntary detentions. States and jurisdictions inconsistently report rates. States differ as to what label they use for detentions; whether they count events or unique persons; whether they report the age group (adult or child), sex, or ethnicity; whether the detention is short- or long-term; how long people are held; whether all eligible counties or institutions are reporting; who prepares the data; and time frames to release data.