Medical Ethics Advisor
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Growing Concerns About Health Data Use
A group recently outlined ethical, legal, and societal standards for data collection, use, and reuse to which researchers, technology companies, and others can be held accountable. The statement assures people the stewardship of their data is taken seriously, and that the company is committed to using it ethically.
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Does Current IRB System Ensure Ethical Research?
A consensus is needed for how to measure IRB quality or effectiveness, and more inspections are needed to ensure instances of IRB noncompliance are identified, according to the authors of a recent report.
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Biden Administration Releases 10 Drugs for Price Negotiation
Medications represent 20% of the total Medicare Part D gross covered prescription costs.
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Pediatric Hematology/Oncology Trainees Want Ethics Expertise
Ethics education would not replace the option or need to obtain a formal ethics consultation. However, such education could lead to fewer cases during which specialists believe they need such assistance.
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Ethics Involvement Is Needed with Medical Artificial Intelligence
Ethicists can help research, design, develop, and implement artificial intelligence programs at the administrative or practice levels.
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Ethicists Are Addressing Social Determinants of Health
Hospitals and health systems should do more to address social determinants of health to meet an ethical obligation to improve community health. Ethicists can collaborate with clinicians and social workers to find solutions. Considering the complexity of such issues, it may be unrealistic to develop effective interventions immediately. But an ethics consult is a good starting point.
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Ethical Approaches to Informed Consent for Genetic Testing
Participants should understand what the test is for, why, what could be found, what type of information will be returned to them (and how), what resources will be available for any needed follow-up care, what will happen to their data, the point of the research, and potential for data to be used in future research.
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Ethicists Are Finding Ways to Meet Needs of Rural Clinicians
For many smaller hospitals or health systems, it is simply impractical to hire an ethicist. The Rural Wisconsin Health Cooperative pools the resources of smaller hospitals. Meetings target areas in which expertise may be lacking at each hospital, including clinical ethics.
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Many Ethical Considerations if Surgeons Record Procedures
Ideally, the surgical team uses the recordings in conjunction with quality improvement and risk management to assess efficiency, professionalism, communication, and leadership. The ethics of video recording should be integrated into graduate and continuous education modules.
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Initiative Raises Organ Referral Rates, Expands Donor List and Transplanted Organ Supply
An individual’s organ donation wishes should be part of their holistic care plan. Ethicists could provide education to clinicians on this point. A culture of trust between the patient community, clinical care providers, the transplant program, and the organ procurement organization is necessary. This takes years to build — and one bad case to break.