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How to customize HIPAA training
Whether you use an outside consultant or do it yourself, training staff in Health Insurance Portability and Accountability Act (HIPAA) compliance should be customized to your own needs and situation. Consider this advice on how to provide the training that is right for your organization.
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Nurses have much to offer with end-of-life care — but are often left out of discussions
Nurses are often the health care providers who know the most about a patient’s wishes for end-of-life care, but are sometimes left out of such discussions. -
Incorporate ethics in all stages of neuroscience research: Avoid damaging ethical lapses
Institutions that fund or conduct neuroscience research should incorporate ethical considerations into all stages of the process, according to the Presidential Commission for the Study of Bioethical Issues’ April 2014 report, Gray Matters, Integrative Approaches for Neuroscience, Ethics, and Society. -
Too often, patients not given culturally competent care
When the family of an elderly Chinese patient insisted she not be told about her diagnosis of metastatic cancer, her physician felt he had an obligation to inform the patient. -
Coverage of brain-dead patient on life support: "Profound lack of understanding about the concept of death"
The widely publicized case of Jahi McMath, a California teenager who remains on life support after being declared brain dead, has generated a great deal of discussion on end-of-life issues, -
VA scandal may do harm to patient-physician relationships
The Veterans Affairs (VA) Hospitals scandal, which involved unduly long delays in getting doctors’ appointments that jeopardized veterans’ health, “inevitably erodes trust by patients in individual providers as well as our system of health care. -
Patients’ right not to know genetic screening results presents ethical challenges
Providers and researchers are increasingly faced with a difficult decision: Should they inform patients of genetic screening results, when patients did not specifically request such results? -
Creative thinking needed when IRBs educate community partners
IRBs working with community partners on non-medical studies need fresh tools, such as resourcefulness and imagination, when engaging in training and education. -
Expert advice for seeking emergency use
For some patients, enrolling in a clinical trial is not an option. They may meet exclusion criteria, or the nearest trial center may be geographically inaccessible, despite having a disease or condition that could benefit from investigational treatment. In such cases, the patients physician can request expanded individual patient access from the Food and Drug Administration. In dire situations, the physician can seek emergency use. -
Plan ahead for imaging IFs, experts say
Advancements in imaging technology mean a greater chance of detecting incidental findings in imaging research subjects. As IRBs turn their attentions to figuring out how to handle and manage IFs, some may not know where to begin or how to get their plans to the implementation stage.