Group gives support to cancer survivors
Group gives support to cancer survivors
Agency reinforces hospice concept
Hospital-based MedCentral Home Care/Hospice in Mansfield, OH, formed a cancer support group for people surviving with cancer — for a very personal reason.
Faith Proietti, MA, MDiv, chaplain, had a mastectomy in 1995. After the surgery and chemotherapy treatment, she looked around for a support group. The hospital didn’t have one, and its oncology nurses were too busy to start one. Proietti decided to start one as part of hospice work.
Emotional support and education
"One reason I started it and brought it under the hospice umbrella is [that] I realized a lot of people I befriended in my treatment had died," Proietti says."I thought if I could educate people about their cancer, and if they weren’t going to make it, then at least I could make them more aware of hospice."
In the nearly three years since Proietti started the group, it has succeeded both as an emotional support group for cancer survivors, and as a means to educate the dying about hospice.
Between 15 to 25 men and women attend the monthly meetings. Sometimes spouses, children, and other loved ones also attend. Since the meetings are held in the hospital chapel, members sometimes attend in wheelchairs with IVs attached.
The group introduces cancer survivors to hospice in a natural way. It’s brought up whenever a member dies or Proietti introduces herself to new members. And the word spreads to the members’ friends and acquaintances. For instance, Proietti says, a group member might mention hospice as an option to a friend in the oncology ward when it appears that the friend is running out of treatment options.
Often spouses of cancer survivors attend the hospice’s grief support group after their loved one dies. Members often call Proietti for advice or support because they know she is a hospice chaplain.
"I think their attitudes do change about hospice the more they hear about it," Proietti says. "I want them to talk with other people who are terminally ill even if they are not."
A focus on living, not dying
Each meeting has a theme. For the anger theme, Proietti had everyone bring pillows that they could punch. Another month might be about humor, in which everyone tells a funny story. At Christmas, the group holds a potluck party. The group also holds a fundraising auction each year to raise money to support members who need help or to buy flowers when members die.
The group features speakers four times a year, and one always involves death, dying, and hospice. Other speakers may include a dietitian, nurse practitioner, and an oncologist. Each speaker helps the cancer survivors learn a little bit more about their disease and treatment, enabling them to make better-informed decisions.
Although some members die, including 15 last year, the group focuses on how to live life fully. Members sang holiday carols in December for patients in the hospital’s oncology ward. Members visit each other’s homes if someone needs that kind of support, and keep in touch with each other between meetings. "We’re an active group that tries to do more for the community and for each other," Proietti says.
Typically, a support group meeting begins with Proietti introducing herself to new members. Everyone sits in a circle. Then she holds a roll call where members talk for three minutes about themselves, their cancer, their families, or whatever they choose to discuss. They may choose not to speak as well.
These introductions usually open up discussions about how someone dealt with a particular treatment. The introductions also enable members to become more comfortable with the fact that they have the "Big C" word in their lives, Proietti says.
If it’s a lecture meeting, the speaker talks for the first 40 minutes to an hour. Then Proietti asks the group if anyone has any questions or problems they’d like to share with the others.
This gives members an opportunity to express their fears and to ask for information that might help them make a decision about chemotherapy or surgery. "Then we have a group discussion as a result of that," she says.
What do you want to do?’
Proietti recounts one meeting that typifies the synthesis between this support group for the surviving and its ties to hospice. One of the group’s members, a woman in her 20s, called Proietti three days before a meeting. The woman had been attending for six months and was now dying and wanted Proietti’s advice. Proietti visited her at her home that day, telling her, "You have to make a decision; what do you want to do?"
The young woman asked her about hospice, and Proietti recommended that she decide quickly. The woman permitted Proietti to call her physician and ask for a referral.
A few days later, the woman came to the support group and made the announcement that she had joined hospice.
"Everyone looked at each other, and we realized as a group that she had come to say good-bye," Proietti recalls.
It stunned the other cancer survivors, and they didn’t know what to say. Proietti asked each member, sitting in a circle, to thank their young companion and tell her what she has meant to them.
"Then I asked her to come into the middle of the circle, and we all gathered together and prayed that God would give her strength on her journey," Proietti says. "There wasn’t a dry eye among us, but it was a moment of transition and pure spirituality and connection."
Proietti says she believes the group’s outpouring of support and prayers gave the woman the strength she needed to go home. She died a week later.
"That’s what we provide for each person who has come to the group: strength, courage, and whatever it takes to walk that journey," she says.
Source
• Faith Proietti, MA, MDiv, Chaplain, MedCentral Home Care/Hospice, 335 Glessner Ave., Mansfield, OH 44903. Telephone: (419) 526-8443.
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